Rare perspective blog
Insights on our approach to collaborating with the rare disease community, supporting our teammates at Ultragenyx, and developing new therapies for rare diseases.
Latest posts
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February 19, 2026
Advocacy
When Ordinary Moments Become Extraordinary: Life with Angelman Syndrome
One mother’s story of raising a son with Angelman syndrome, navigating uncertainty, finding community, and celebrating everyday moments.
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November 19, 2025
Advocacy
Raregivers: Supporting the Emotional Journey of Caregivers
In honor of National Family Caregivers Month, we spotlight Raregivers—a global network delivering over 1.5 million hours of emotional support to families affected by rare diseases.
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November 18, 2025
Culture
Developing the next generation of STEM talent with Biotech Partners
How Ultragenyx is supporting California Bay Area high school students through outreach and internship placement
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