Rare perspective blog
Insights on our approach to collaborating with the rare disease community, supporting our teammates at Ultragenyx, and developing new therapies for rare diseases.
Latest posts
View all posts >-
November 19, 2025
Advocacy
Raregivers: Supporting the Emotional Journey of Caregivers
In honor of National Family Caregivers Month, we spotlight Raregivers—a global network delivering over 1.5 million hours of emotional support to families affected by rare diseases.
Read more >
-
November 18, 2025
Culture
Developing the next generation of STEM talent with Biotech Partners
How Ultragenyx is supporting California Bay Area high school students through outreach and internship placement
Read more >
-
November 12, 2025
Research Advocacy
Misunderstood. Isolated. Exhausted.
Caregivers of children with Sanfilippo syndrome reflect on the impact the ultra-rare disease has on families.
Read more >