Rare perspective blog
Insights on our approach to collaborating with the rare disease community, supporting our teammates at Ultragenyx, and developing new therapies for rare diseases.
Latest posts
View all posts >- March 8, 2024 How you can inspire inclusion on International Women’s Day Read more >
- October 25, 2023 Advocacy A Rare Reunion 25 years after participating in a clinical trial, rare disease patients and families reunite with the researchers who developed a breakthrough treatment for a deadly childhood disease. Read more >
- September 21, 2023 Advocacy Achieving the Life-saving Potential of Newborn Screening After 60 Years of Newborn Screening, Political Leadership is Needed to Ensure Rare Disease Diagnosis Keeps Pace with Science Read more >