Rare perspective blog
Insights on our approach to collaborating with the rare disease community, supporting our teammates at Ultragenyx, and developing new therapies for rare diseases.
Latest posts
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January 7, 2025 Advocacy Guest post: Living life by the clock Two GSDIa advocates share the impact the genetic disorder has on families. Read more >
- December 20, 2024 Culture The Hidden Cost of Always Being ‘On’ A leadership lesson from a VP at Ultragenyx who has been on a ‘quest to learn how to rest.’ Read more >
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September 10, 2024 Advocacy Policy Legislative wins for newborn screening Ultragenyx is celebrating legislative wins in Tennessee and Alabama for this year’s Newborn Screening Awareness Month. Read more >