Ultra-Committed

Grants and
contributions

Ultragenyx is committed to supporting initiatives that provide impactful resources for the rare disease community, healthcare education, STEAM education, and local community organizations.

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Independent medical education

Ultragenyx offers educational grants for independent accredited and non-accredited clinical, technical, and scientific programs, including rare and ultra-rare continuing medical education for health-care providers.

In certain clinical areas, a request for proposal (RFP) will be posted to this site for independent medical education. Please check back for more information or reach out to Ultragenyx Grants Program at [email protected].

We are currently accepting independent medical education proposals in the following areas:

  • Mucopolysaccharidosis type VII (MPSVII)
  • Mucopolysaccharidosis type IIIA (MPS IIIA)
  • Long-chain fatty acid oxidation disorders (LC-FAOD)
  • Glycogen storage disease type 1a (GSD1a)
  • Homozygous familial hypercholesterolemia (HoFH) — all jurisdictions except the US
  • X-linked hypophosphatemia (XLH) – Latin America, Turkey only
  • Tumor-induced osteomalacia (TIO) – Latin America, Turkey only
  • General gene therapy education

Learn more about independent medical education

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Health-related grant funding

Ultragenyx accepts sponsorship and grant applications from nonprofit patient organizations and health institutions, including but not limited to requests related to:

  • Patient education and resources
  • Patient, family, and caregiver meetings and events
  • Patient community events
  • Scientific meetings (non-accredited)
  • Disease awareness campaigns
  • Research programs
  • Medical publications (Europe and Latin America only)
  • Fellowships

Learn more about health-related grants

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Charitable donations

Our global corporate philanthropy program supports public health and wellness, educational, and humanitarian initiatives directed towards the rare disease community and other local or at-risk communities. Specifically, we focus on:

  • Science, technology, engineering, the arts, and mathematics (STEAM) education, including equity and inclusion initiatives, scholarships, and science events or programs
  • Rare disease community support, including patient or sibling programs, respite care or support programs for care partners, and awareness initiatives
  • Equitable healthcare, including public health initiatives, access to services, and wellness for underserved communities with the aim to reduce healthcare disparities
  • Emergency relief aid, including providing immediate assistance during humanitarian crises, particularly in the areas of public health and medical services

Learn more about charitable donations

Ultragenyx EMEA and LATAM – HCP Travel Grant Requests for Scientific Congresses

Supporting Continuous Medical Education in Rare Diseases

At Ultragenyx, we recognize the value of continuous medical education for HCPs involved in diagnosing and managing rare and ultra-rare diseases. We may offer travel grant for HCPs in the EMEA and LATAM region to attend independent scientific congresses of highly medical and scientific interest and value— in full alignment with applicable laws, industry-accepted practices and standards, and Ultragenyx-internal compliance policies.

Who Can Apply?

Eligible applicants must be:

  • A qualified HCP who is:
    • an expert in the therapeutic area of focus and will benefit from the continued scientific updates and scientific exchange that can only be obtained through participation in the specific congress, OR
    • in the early years of his/her practice and is acquiring the initial knowledge in this specific therapeutic area, which is of specific his/her interest, OR
    • presenting a publication relevant to Ultragenyx, related to the company pipeline or commercial assets, or being a speaker at Ultragenyx satellite events to the congress (e.g., Congress Symposium), AND willing to provide evidence that has in fact attended the event (e.g., certificate of congress attendance), OR
  • Whether not possible by an individual HCP, an institution or clinic submitting on behalf of an HCP.
  • Based in the EMEA or LATAM region.
  • Requesting support for attendance at an independent scientific congress, aligned with the research interests
    relevant to Ultragenyx.

Learn more about HCP Travel Grant

What Can Be Supported?

Subject to approval and compliance with applicable laws and regulations, Ultragenyx may provide support for:

  • Congress registration fees
  • Travel expenses
  • Accommodation during congress dates

We require all funding applications be submitted through our Grants Portal

Applications should be submitted at least 60 days before the congress start date.
Applicants requiring a funding decision before making travel arrangements should allow a minimum of 30 days for review.

For more information about the Ultragenyx Grants Program, please contact [email protected].

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