Grants and Charitable Contributions

Ultragenyx is committed to supporting initiatives that provide impactful resources for the rare disease community, healthcare education, STEAM education, and local community organizations.

We provide grant support for (including, but not limited to):

Independent Medical Education: Educational grants for accredited and non-accredited clinical, technical, and scientific programs or Continuing Medical Education activities focused on rare diseases for Health Care Providers.

In certain clinical areas, a Request for Proposal (RFP) will be posted to this site for Independent Medical Education. Please check back for more information or reach out to Ultragenyx Grants Program for more information,

We are currently considering Independent Medical Education in the following areas:

  • X-Linked Hypophosphatemia (XLH)
  • Tumor Induced Osteomalacia (TIO)
  • Mucopolysaccharidosis Type VII (MPSVII)
  • Long Chain Fatty-Acid Oxidation Disorders (LC-FAOD)
  • Homozygous Familial Hypercholesterolemia (HoFH) – Ex-US only
  • General Gene Therapy Education

Health-Related Grant Funding: Sponsorships and Grants for non-profit patient organizations and for-profit health institutions in support of:

  • Patient Advocacy Focused Initiatives
    • Patient Education
    • Patient, Family, and Caregiver Meetings and Events
    • Patient Community Events
  • Scientific Meetings (non-accredited)
  • Disease Awareness Campaigns
  • Research Programs
  • Medical Publications (Europe and Latin America only)
  • Fellowships
  • Sponsorships

We are currently considering Health-Related Grant Funding in the following areas:

  • Bone Endocrine: X-Linked Hypophosphatemia, Tumor Induced Osteomalacia, Osteogenesis Imperfecta
  • Metabolics: Mucopolysaccharidosis Type VII, Long Chain Fatty-Acid Oxidation Disorders, Glycogen Storage Disease (GSD) Type Ia and Type III, Ornithine Transcarbamylase Deficiency, Wilson Disease, Creatine Transporter Deficiency, Homozygous Familial Hypercholesterolemia (HoFH)
  • Central Nervous System and Neurology: Angelman Syndrome, Duchenne Muscular Dystrophy, CDKL5

Charitable Donations: Our global corporate philanthropy program supports public health and wellness, educational and humanitarian initiatives directed towards the rare disease community and other local or at-risk communities. More specifically, we focus on:

  • Science, Technology, Engineering, the Arts and Mathematics (STEAM) education including diversity, equity, and inclusion (DEI) initiatives, scholarships, and science events or programs
  • Rare Disease Community Support including patient or sibling programs, respite care or support programs for care partners, and awareness initiatives
  • Equitable Healthcare including public health initiatives, access to services, and wellness for underserved communities

We require all funding applications be submitted through our Grants Portal.

Eligibility to Apply (optional tool to help you determine the correct type of grant request)

Medical Education

Health Related Grant

Charitable Donations

Requests for grant funding should be submitted 30 days prior to the date you require a decision or a minimum of 60 days prior to your program start date, though longer periods are encouraged. All applications are formally and thoughtfully reviewed by a dedicated committee(s) of representatives. Once submitted, you will be notified by email with our decision.

For more information about the Ultragenyx Grants Program, please


Have questions? Reach out for more information.

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