Grants and Charitable Contributions

Ultragenyx is committed to supporting initiatives that provide impactful resources for the rare disease community, healthcare education, STEAM education, and local community organizations.

We provide grant support for (including, but not limited to):

  • Independent Medical Education: Educational grants to support clinical, technical, and scientific programs or Continuing Medical Education activities focused on rare diseases for Health Care Providers.
  • Health-Related Grant Funding: Sponsorships and Grants for non-profit and for-profit organizations and institutions in support of:
    • Patient Focused Initiatives, Education, Meetings, and Family Events
    • Scientific Meetings (non-accredited)
    • Disease Awareness Campaigns
    • Fellowships
    • Sponsorships
  • Charitable Donations: Donations for local, non-profit organizations, based in the communities where we serve and work.

We require all funding applications be submitted through our Grants Portal.

Eligibility to Apply (optional tool to help you determine the correct type of grant request)

Medical Education

Health Related Grant

Charitable Donations

We are currently considering Health-Related Grant Funding for the following areas:

  • Bone Endocrine (X-Linked Hypophosphatemia, Tumor Induced Osteomalacia, Osteogenesis Imperfecta)
  • Inborn Errors of Metabolism (Mucopolysaccharidosis Type VII, Long Chain Fatty-Acid Oxidation Disorders, Glycogen Storage Disease (GSD) Type Ia and Type III, Ornithine Transcarbamylase Deficiency, Wilson disease, Creatine Transporter Deficiency, CDKL5)
  • Neurology (Angelman Syndrome, Duchenne Muscular Dystrophy)

We are currently considering Independent Medical Education for the following areas:

  • XLH
  • TIO
  • Gene Therapy

In certain clinical areas, a Request for Proposal (RFP) will be posted to this site for Independent Medical Education. Please check back for more information, or reach out to Ultragenyx Grants Program for more information,

Independent Medical Education and Health-Related Grant Funding areas of interest are subject to change.

Requests for grant funding should be submitted 30 days prior to the date you require a decision or a minimum of 60 days prior to your program start date, though longer periods are encouraged.

The grant requester (and ultimately the grantee) is responsible for the design, implementation, sponsorship, and conduct of the independent initiative supported by the grant, including compliance with any regulatory requirements.

For more information about the Ultragenyx Grants Program, please email

Have questions? Reach out for more information.

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